Table 1. Patient-reported outcomes available in BHOP

Mental Health Core Neuro
General infomation Age, sex, education, occupation, etc
Current status
Social network   OARS-social resources scale  
Visual Analog Health States   Pain, Fatigue, Sleep, Stress, Anxiety, Mood, Overall health, QOL, Shortness of breath

Speech, coping, and driving items (from PBSI)

    Reintegration to Normal Living  
      Barthel Index-Self-report
    Starkstein’s Apathy Scale  
Past 7 days
Disability / Function Sheehan Disability Scale   Preference-based MS index
Past 2 weeks
Mood PHQ9
Past 4 weeks
Fatigue and mental health   SF-36 (RAND-36 version)  
Falls   History of falls  
Cognition   C3Q - self assessment  
Sleep Athens Insomnia Scale    
Past 6 months
    Physical activity (single item)  
Smoking Fagerstrom Test for Nicotine Dependence Smoking questionnaire  
Alcohol use   AUDIT-C  
Drug use   DAST-10  

Additional disease specific questionnaires

Parkinson’s disease: PDQ-8 Rasch version and UPDRS-PRO

Stroke: PBSI

Multiple Sclerosis: Patient Determined Disease Steps

Table 2. Performance based task to assess cognitive function (computerized)

  Mental Health Core Neuro
Cognition   Digit-Symbol Coding Test (open source version of The Symbol Modalities Test - SDMT)  
IQ   Raven Matrix  

Table 1a. Additional bank of outcomes that will be included or substituted based on the health condition and specific site requirements

General Information Items items or time
Sexual and Gender Identity 3
Bank of outcomes (additional / optional PROs)  
The Cannabis Use Disorder Identification Test-Revised (CUDIT-R) 8
General Anxiety Disorder-7 (GAD-7) 7
Adult ADHD Self-Report Screening Scale for DSM-5 (ASRS-5) 6
Childhood Experiences of Violence Questionnaire 15
Ten-Item Personality Inventory (TIPI) 10
SF-36 (RAND-36 version) 36
Health Assessment Questionnaire - Disability Index (HAQ-DI) 27
Neuro-Qol-Lower Extremity - Short Form (NIH) 8
Neuro-Qol-Upper Extremity - Short Form (NIH) 8
PROMIS-29 (NIH) 29

Additional computerized cognitive tasks

Multi-racial Face Emotion Identification Test ~3 minutes
Visual Paired Associated Test 5 minutes